Autism Support / Advice & next steps

Autism assessment: what happens and how to support your child while waiting

Families do not need to prove autism before asking for help. Describe the child’s individual strengths, differences and support needs while assessment questions are explored.

Quick answer

An autism assessment looks at a child or young person’s development, communication, interaction, sensory experiences, behaviour and daily functioning. Support at school should respond to need now; it does not need to wait for an assessment outcome or a diagnosis.

What this means

Assessment pathways vary by age, area and service. The process often combines developmental history with information from home, school or nursery and, where appropriate, observation or structured activities. Ask the service who will assess, what information it needs, how the child’s communication and sensory needs will be supported, and how feedback will be given. While waiting, ask school to record the barriers your child experiences and the adjustments that help. This may include predictable routines, clear communication, reduced sensory load, transition support, a trusted adult or flexible ways to show learning. Keep a factual record of patterns across settings and the child’s own views; this can help conversations with both school and clinicians. If you are considering a private assessment, check the clinicians’ registration, the question the assessment will answer, what the fee includes and what happens after the report. A private report is not automatically required or guaranteed to change school provision.

No single behaviour, questionnaire or observation can confirm autism. Clinicians consider a pattern across development and settings and also explore other explanations or co-occurring needs.

A diagnosis may help explain a child’s profile and inform support, but it does not automatically determine school provision, benefits or an EHCP. Those decisions consider individual need and evidence.

Questions to ask

  • Who will be involved in the assessment and what are their professional roles?

  • How will information from home, education and the child be combined?

  • What adjustments will make the process accessible and less stressful?

  • What feedback, written report and follow-up will be provided?

Local Northamptonshire route

Autism diagnostic referrals are health-service routes and can change, so confirm the current pathway with the child’s GP, school or referring service rather than relying on an old form. North Northamptonshire and West Northamptonshire provide separate Local Offer and SENDIASS information for education and family support; school adjustments do not require a diagnosis.

Free support and useful links

External free resource

West Northamptonshire SENDIASS

Free, impartial SEND information, advice and support for families in West Northamptonshire.

External free resource

North Northamptonshire SENDIASS

Free, impartial SEND information, advice and support for families in North Northamptonshire.

External free resource

Northamptonshire Local Offer

Local SEND information, services and support routes for children and young people.

External free resource

GOV.UK SEND information

Official information about special educational needs, EHC plans and support.

External free resource

IPSEA

Free SEND law information and resources for parents and carers.

External free resource

Contact

Advice and support for families with disabled children.

External free resource

Council for Disabled Children

National resources and information about SEND support and policy.

External free resource

SOS!SEN

Independent SEND information and advice for families.

Professional help is available if you need it

NHS assessment and school support are starting points for many families. Private assessment is optional and should answer a clear question. A paid report does not guarantee acceptance for every education or statutory decision, so ask how it can be used before booking.

What happens next?

The assessment service should explain its conclusion and any recommendations. Share useful advice with school with appropriate consent, agree support based on identified needs and ask who to contact if the report is unclear or new concerns emerge.

Support that may help

GP or NHS referral service · School SENCO · Appropriately qualified autism assessment clinicians · SENDIASS

SEND Lantern provides general information to help families understand possible next steps. It does not replace legal, medical or local authority advice.

Independent guidance for families

SEND Lantern is an independent guidance platform operated by SEND Lantern Ltd. We help families explore special educational needs and disabilities support, possible next steps and relevant services. SEND Lantern is not part of the NHS, a local authority, a school or any individual service provider. Information on this website is general guidance and should not be treated as medical, legal or educational advice.